Social Media | Some Say It's Bad - For the Disability Community It Creates Jobs and Community

There’s lots of buzz on whether social media is more detrimental than it is helpful or productive. 

There’s plenty of arguments as to why we should abandon social media now before it completely takes over the world.. like how easy social media makes cyber bullying possible. But, for some, it’s a necessary tool to create income and connect with people, without which, they couldn’t have access to those basic human needs.

Read More
Alex DzimitowiczComment
If you're debating on getting the flu shot, read this

I have a rare genetic disease called Spinal Muscular Atrophy. SMA causes progressive muscle weakness throughout the body — including the respiratory system. My current lung capacity is hovering around 20% which means that lung health is paramount to my ability to be healthy, work, and live my life. I take many precautions during flu season to avoid any flu or respiratory illness at all costs, such as never really leaving the house unless it’s for beer & sushi, sanitizing everything, getting a flu shot, avoiding sick people, etc. Why? Because a simple cold can make me very sick and the flu.. is the mother of all sicknesses for someone with a weakened respiratory system.

Read More
Alex DzimitowiczComment
Caregiver burnout: from where I sit

I have a physical disability called Spinal Muscular Atrophy that requires a fair amount of caregiving. Caregiving has and always will be a part of my life and comes with it’s struggles, on both sides — the caregiver’s and the person receiving the caregiving. Amongst the myriad of struggles attached to caregiving, I think the most common struggle for disabled kids / adults on the receiving end of caregiving is feeling “caregiver burden.”

Read More
Alex DzimitowiczComment
Relying on others for simple daily care activities will ALWAYS be a part of my life

While most days I don’t let the fact that I can never take a shit without interacting with someone get to me, sometimes these facts creep up on me like a dormant monster that’s always hiding under my bed, waiting to come out and scare me. I’m using the metaphor of a monster to compare the fact that I’ll always need to rely on people for the rest of my life because ... sometimes it scares me. What if one day I have no one?

Read More
Why I Don’t Want To Be Referred To As “Special Needs”

Whenever I see articles written about disability and see the title replacing the word disability with special needs, I get a shutter of distaste that consumes my “disability cringy things” part of my brain — the same part of my brain that shutters when someone applauds me for being out in public.. because when you’re disabled, leaving your house is brave. You know, all the things.

Read More